Help us build the future of HIV care
The HIV community have identified ageing, long-term impacts of treatment, access to medication, mental health and stigma as their main health priorities for future care.
Earlier this year more than 230 members of the HIV community took part in a broad conversation with Alfred Health about the future of HIV care.
This was supported by HIV specialist groups including Living Positive Victoria, Thorne Harbour Health and Positive Women Victoria, along with the Department of Health.
Alfred Health HIV Services Director, Professor Jenny Hoy said the extensive conversation meant that the community were influencing major decisions about future care.
“So much has changed for the better in the world of HIV and it’s important to know where to put our resources in delivering care, especially with the increasingly diverse experiences we are now seeing in our community,” Professor Hoy said.
Importantly 90 per cent of respondents felt that HIV services met their current needs and priorities to a large degree.
Professor Hoy said the finding were heartening, but more could be done.
“For the 10 per cent of respondents who felt their needs were not met, the main issues were access and availability of services in regional and rural areas.
“That’s why we’re planning to develop clinical partnerships with rural and regional hospitals, sexual health Centres and GPs to ensure these people’s needs are met.”
The survey also asked what was most important for people if they needed hospital care. Top responses included; respect and privacy, confidentiality, private rooms and the capability of health professionals.
“While the demand for inpatient care has decreased, the ongoing need for inpatient care, especially for people living with a range of complex conditions was clear," said Professor Hoy.
“Based on this feedback, we will create a new purpose-built facility with three to five beds that brings with it the legacy of Fairfield House and the support of experienced and skilled specialists.”
Positive Women Victoria Chief Executive, Kirsty Machon said it was reassuring to hear the voice of positive women in the community feedback.
"The response from Alfred Health addresses the diverse needs and priorities in our community, which is vital for the HIV care now and in the future,” Ms Machon said.
Once again, the community will have a say in how this is done with the facility to be created through a co-design process with community, partner organisations and clinicians.
Living Positive Victoria Chief Executive Officer, Richard Keane encouraged people to get involved in the co-design process.
“There is a real opportunity to create the care we want for our community; care that wraps around the individual, says Richard.
“The people who’ve taken time to get involved in this review are already changing the future,” Mr Keane said.
Read the findings and response in detail at: www.alfredhealth.org.au/about/patients-come-first/hiv-future-care
