Cardiac Amyloidosis Clinic
We care for and treat people with Cardiac Amyloidosis.
Clinical service overview
Amyloidosis refers to a group of rare diseases in which misfolded proteins can aggregate, deposit, and accumulate in different organs of the body. There are several different types of protein disorders that can cause amyloidosis, and some of these can particularly affect the heart. This can have the effect of causing thickening and stiffening of the heart muscle. These changes can contribute to symptoms of heart failure such as fluid accumulation and shortness of breath.
Diagnosis of amyloidosis can be challenging, and The Alfred's Cardiac Amyloid Clinic offers a comprehensive investigation and management service for people who have, or are suspected of having, cardiac amyloidosis. Our diagnostic services include advanced cardiac imaging such as echocardiography, nuclear medicine scintigraphy scans, and cardiac MRI. We also are highly experienced in obtaining samples of heart tissue with biopsy, which can sometimes be required.
Amyloidosis can affect many parts of the body and frequently requires input from many different specialists. We are a multidisciplinary team who work closely with our colleagues in other relevant specialities or health services as required, such as haematologists, nephrologists, or neurologists. Our clinicians are active in amyloid research and have access to the latest trials and therapies.
Current research projects
HELIOS-B: A Phase 3, Randomized, Double-blind, Placebo-controlled, Multicenter Study to Evaluate the Efficacy and Safety of Vutrisiran in Patients with Transthyretin Amyloidosis with Cardiomyopathy (ATTR Amyloidosis with Cardiomyopathy).
Hare, James (Primary Chief Investigator (PCI)) Downes, Rebecca (Project Manager)
Status Active: Effective. Start/end date27/04/21 → 27/04/25
Completed
TTRACK - Prevalence and characteristics of transthyretin amyloidosis in patients with left ventricular hypertrophy of unknown etiology.
Hare, James (Primary Chief Investigator (PCI))Downes, Rebecca (Project Manager)
Status: Finished. Effective start/end date21/09/20 → 31/12/21
Acute coronary syndromes research
Cardiac imaging research
Heart failure research and clinical trials
Refer your patient
Fax referral to us
We accept GP and specialist referrals to this service.
All referrals are triaged by the service according to clinical urgency. Patients requiring immediate assessment should be sent to the Emergency & Trauma Centre.
To refer your patient, complete and fax a referral to us. For urgent referrals, also contact the service Registrar to discuss the case.
To ensure appropriate and timely triage, include all demographic and clinical details as well as relevant investigation results.
If you are concerned about any delay of the appointment or if there is any deterioration in your patient’s condition, contact the service Registrar on call on (03) 9076 2000.
- Referral Phone (03) 9076 2025
- Referral Fax (03) 9076 6938
- Referral Email outpatient@alfred.org.au
Clinic times
Day | Campus | Time |
---|---|---|
Tuesday | The Alfred | 1:30pm - 5:00pm |
Wednesday | The Alfred | 9:00am - 12:30pm |
Clinic consultants
- A/Prof James Hare: Cardiology
- Dr Sarah Gutman: Cardiology
- Dr Caitlin Cheshire: Cardiology
- Dr Yusuke Sata: Cardiology (hypertension)
MBS-billed service
On the doctor’s behalf, Alfred Health can bulk bill the cost of the consultation for some services through Medicare. This means there is no out of pocket expense to the patient.
MBS-billed services require a current referral. Provide your patient with a 12 month referral to see the specialist of your choice at the requested clinic.
Referrals must be addressed to a named specialist or the Head of service, listed at the top of this page. Clinic consultants are listed on every clinic page.
Note that from time to time, your patient may be seen by another specialist in the clinic, in order to expedite their treatment.